When I was diagnosed with CML, I felt scared, worried about my family’s future but surprisingly, not about my health. Although the messages from the haematologists were somewhat optimistic, when they called my disease as ” the good leukaemia,” something about that didn’t sit right with me.
Making the best of living with CML is pretty clear for me: to have met wonderful people from all over the world, either personally in the CML Horizons Conference and other advocacy meetings or even through the social media networks, who are giving unconditional support to the CML family.
Having these amazing people close to me, it is easier to feel like helping others, sharing information, being part of new projects… Thanks to them I feel I am a patient advocate today.
On the other hand, the bad side of living with CML is certainly to not being able to enjoy activities with the same energy as before, to not being able to plan ahead as I used to do before the disease.
Enjoy now, the future is not yet here!